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Browsing by Author "Staunton, C."

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Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report

Staunton, C.; Adams, R.; Dove, E.S.; Harriman, N.; Horn, L.; Labuschaigne, M.; Mulder, N.; Olckers, A.; Pope, A.; Ramsay, M.; Swanepoel, C.; Loideain, N.N.; de Vries, J. (2019-07-02)

Genomic research and biobanking has undergone exponential growth in Africa and at the heart of this research is the sharing of biospecimens and associated clinical data amongst researchers in Africa and across the world. ...
Letter to the editor: Privacy rights of human research participants in South Africa must be taken seriously

Staunton, C.; Adams, R.; Botes, M.; Dove, E.S.; Horn, L.; Labuschaigne, M.; Loots, G.; Mahomed, S.; Olckers, A.; Pepper, M.S.; Pope, M.; Ramsay, M.; Loideain, N.N.; De Vries, J. (Earthscan, 2020-03-18)

The Protection of Personal Information Act 4 of 2013[1] (POPIA) was enacted by the South African (SA) parliament in 2013 after a long process of public consultation. To allow all sectors of SA society sufficient time to ...
Protection of Personal Information Act 2013 and data protection for health research in South Africa

Staunton, C.; Adams, R.; Anderson, D.; Croxton, T.; Kamuya, D.; Munene, M.; Swanepoel, C. (Oxford University Press, 2020-02-14)

The right to privacy is constitutionally protected in South Africa (SA) by virtue of section 14 of the Constitution. As a corollary to that, section 32, which provides for the right of access to information by public and ...
The psychology of "cure": unique challenges to consent processes in HIV cure research in South Africa

Moodley, K.; Staunton, C.; Rossouw, T.; de Roubaix, M.; Duby, Z.; Skinner, D. (2019-03-22)

Consent processes for clinical trials involving HIV prevention research have generated considerable debate globally over the past three decades. HIV cure/eradication research is scientifically more complex and consequently, ...
Safeguarding the future of genomic research in South Africa: broad consent and the Protection of Personal Information Act No. 4 of 2013

Staunton, C.; Adams, R.; Botes, M.; Dove, E.; Horn, L.; Labuschaigne, M.; Loots, G.; Mahomed, S.; Makuba, J.; Olckers, A.; Pepper, M.S.; Pope, A.; Ramsay, M.; Loideain, N.N.; de Vries, J. (2019-07-03)

Genomic research has been identified in South Africa (SA) as important in developing a strong bio-economy that has the potential to improve human health, drive job creation and offer potential solutions to the disease ...

Browsing by Author "Staunton, C."

Browsing by Author "Staunton, C."

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