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Refining interventions through formative research: a focus on ethical considerations in a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal

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dc.date.accessioned 2020-02-10T12:15:21Z
dc.date.available 2020-02-10T12:15:21Z
dc.date.issued 2019-12-05 en
dc.identifier.uri http://hdl.handle.net/20.500.11910/15060
dc.description.abstract Conducting formative research is a scientific, ethical, and community engagement imperative. This article describes how formative research refined ethical processes for a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal. In-depth interviews were conducted to explore community (n = 20) and key stakeholders (n = 20) needs, concerns, and perspectives on the FBCT model, including ethical issues for working with children and families. Data were analyzed thematically using NVivo software. Four key ethical considerations emerged, namely, respect for community norms and cultural practices; confidentiality, privacy, and forced disclosure; identifying potential risks and benefits; and voluntariness and capacity to consent. Data were used to refine the intervention and address participants concerns by engaging the community, providing ethics training for intervention staff, and incorporating independent consent mechanisms for adolescent HIV testing that supported opportunities for family-based testing and disclosure. en
dc.format.medium Print en
dc.subject HIV/AIDS en
dc.subject FAMILY-BASED COUNSELING AND TESTING (FBCT) en
dc.subject KWAZULU-NATAL en
dc.subject INTERVENTION en
dc.title Refining interventions through formative research: a focus on ethical considerations in a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal en
dc.type Journal Article en
dc.description.version Y en
dc.ProjectNumber SPAHAA en
dc.Volume December en
dc.BudgetYear 2019/20 en
dc.ResearchGroup Human and Social Development en
dc.SourceTitle Journal of Empirical Research on Human Research Ethics en
dc.ArchiveNumber 11102 en
dc.URL http://ktree.hsrc.ac.za/doc_read_all.php?docid=22012 en
dc.PageNumber Online en
dc.outputnumber 10220 en
dc.bibliographictitle Essack, Z., Ngcobo, N., van der Pol, N., Knight, L., Rochat, T., Mkhize, M. & Van Rooyen, H. (2019) Refining interventions through formative research: a focus on ethical considerations in a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal . <i>Journal of Empirical Research on Human Research Ethics</i>. December :Online. en
dc.publicationyear 2019 en
dc.contributor.author1 Essack, Z. en
dc.contributor.author2 Ngcobo, N. en
dc.contributor.author3 van der Pol, N. en
dc.contributor.author4 Knight, L. en
dc.contributor.author5 Rochat, T. en
dc.contributor.author6 Mkhize, M. en
dc.contributor.author7 Van Rooyen, H. en


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