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Adolescent HIV self-management: lived experiences of adolescents, caregivers, and health care workers in a South African context

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dc.date.accessioned 2020-02-25T08:15:16Z
dc.date.available 2020-02-25T08:15:16Z
dc.date.issued 2020-02-25 en
dc.identifier.uri http://hdl.handle.net/20.500.11910/15137
dc.description.abstract Adolescence is a complex developmental phase, made more complex by chronic disease. When dealing with treatment and the health impact of chronic diseases, adolescents need to learn to self-manage an array of challenges. Unfortunately, there is a gap in the literature related to chronic disease self-management in adolescents living with HIV. We describe the phenomenon from the perspectives of adolescents, caregivers, and health care workers (HCWs) in South Africa. Individual interviews were conducted with 6 adolescents, 6 caregivers, and 6 HCWs, followed by 5 adolescent focus groups. Interpretive phenomenology guided exploration of social and cultural experiences and found that adolescent self-management required an understanding of HIV and hope for the future. Adolescents also needed skills to prioritize and negotiate care while managing stigma. These processes were facilitated by love and support, primarily from immediate family, and by the adolescent engaging with family, HCWs, and peers. en
dc.format.medium Print en
dc.publisher Earthscan en
dc.subject ADOLESCENTS en
dc.subject HEALTH CARE WORKERS en
dc.subject HIV/AIDS en
dc.subject SELF-MANAGEMENT en
dc.title Adolescent HIV self-management: lived experiences of adolescents, caregivers, and health care workers in a South African context en
dc.type Journal Article en
dc.description.version Y en
dc.ProjectNumber N/A en
dc.Volume 30(4) en
dc.BudgetYear 2019/20 en
dc.ResearchGroup Social Aspects of Public Health en
dc.SourceTitle Journal of the Association of Nurses in AIDS Care en
dc.PlaceOfPublication Ohio en
dc.ArchiveNumber 11194 en
dc.PageNumber Online en
dc.outputnumber 10314 en
dc.bibliographictitle Crowley, T., Van der Merwe, A. & Skinner, D. (2019) Adolescent HIV self-management: lived experiences of adolescents, caregivers, and health care workers in a South African context. <i>Journal of the Association of Nurses in AIDS Care</i>. 30(4):Online. en
dc.publicationyear 2019 en
dc.contributor.author1 Crowley, T. en
dc.contributor.author2 van der Merwe, A. en
dc.contributor.author3 Skinner, D. en


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