Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa

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dc.date.accessioned 2017-03-31 en
dc.date.accessioned 2022-08-17T15:07:57Z
dc.date.available 2022-08-17T15:07:57Z
dc.date.issued 2017-03-31 en
dc.identifier.uri http://hdl.handle.net/20.500.11910/10868
dc.description.abstract The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-related or not. It is often not possible for sick children and their carers to attend clinics and hospitals cannot accommodate children for long periods of time. As a result children are often cared for in their own homes where caregivers require support to provide informed and sensitive care to reduce children's suffering. Home-care places a heavy burden on families, communities and home- and community-based care workers. This project involved the development and pilot evaluation of a training and support package to guide home and community-based care workers to help caregivers of seriously ill young children at home in southern Africa. A number of research methods were used, including a cross-sectional survey of content experts using the Delphi technique, participatory action research with photo elicitation and qualitative thematic analysis. Because the palliative care needs of these children are complex, the package focuses on delivering 9 key messages essential to improving the quality of care provided for young children. Once the key messages were developed, culturally relevant stories were constructed to enhance the understanding, retention and enactment of the messages. The various research methods used, including literature reviews, the Delphi technique and photo-elicitation ensured that the content included in the package was medically sound and culturally relevant, acceptable, feasible, and comprehensive. The end product is a home-based paediatric palliative care training and support package in English designed to help train community workers who are in a position to support families to care for very sick young children at home as well as to support families in looking after a very sick child. A pilot study to assess the training and support package found it to be useful in delivering the key messages to caregivers. The training component was found to be feasible. It is concluded that the package offers a practical means of integrating palliative care with home-based care. Further implementation and evaluation is needed to establish its utility and impact. en
dc.format.medium Print en
dc.publisher BMC en
dc.subject HIV/AIDS en
dc.subject SOUTHERN AFRICA en
dc.subject HOME CARE en
dc.subject CHILDREN en
dc.title Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa en
dc.type Journal Article en
dc.ProjectNumber SPAEAA en
dc.Volume 15(1) en
dc.BudgetYear 2016/17 en
dc.ResearchGroup HIV/AIDS, STIs and TB en
dc.SourceTitle BMC Palliative Care en
dc.ArchiveNumber 9720 en
dc.URL http://ktree.hsrc.ac.za/doc_read_all.php?docid=18044 en
dc.PageNumber Online en
dc.outputnumber 8617 en
dc.bibliographictitle Naicker, S.N., Richter, L.M., Stein, A. & Marston, J. (2016) Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa. BMC Palliative Care. 15(1):Online. http://hdl.handle.net/20.500.11910/10868 en
dc.publicationyear 2016 en
dc.contributor.author1 Naicker, S.N. en
dc.contributor.author2 Richter, L.M. en
dc.contributor.author3 Stein, A. en
dc.contributor.author4 Marston, J. en


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